Abject Apologies to the ‘Armless.
Ms Raccoon could do with a Gatling gun this morning, so many targets, so little time.
The blank blog page looms in front of me, reminiscent of a blank pad of A4 paper long ago, on which were destined to be written the wishes of a young lady who had just turned 18. She was officially an adult now, an age when all right thinking liberal people believe that she should be in charge of her own destiny – that’s right and proper isn’t it? I mean, you wouldn’t want to argue that the freedom to live as you wish should only be accorded to some human beings and not others? Good. Then you’ll understand why a High Court judge was waiting for me to return with word of how Annie wished to live.I was getting paid for turning her thoughts into words. The Judge would be paid for reading them and acting accordingly.
I would have shaken hands with her, it is the social norm. I mean you wouldn’t want to argue that good manners be extended to some people and not to others would you? We are all equal? Good. Then you’ll understand how awkward I felt to discover that Annie had no hand to shake. Nor arms to attach them to.
Had Annie stood to greet me, she would scarcely have topped five foot, a tiny girl, just bursting into puberty. But Annie had no feet to stand on, nor legs to attach them to.
I spoke to wish her Good Day – for there are those who would be quick to condemn me had I behaved any differently towards her than other Human Beings, for we are all equal aren’t we? The Disabled are no less Human and deserving of good manners and consideration than others? But Annie had no ears to hear me, had never heard a human voice, and thus had never learnt to speak. She was both deaf and dumb. She had never learnt to reward her Mother with the smile that encourages further human kindness from the most unwilling parent, nor to produce the tears and screams that bring comfort. Her face was, and always had been, expressionless, devoid of inspiration as to what might be going on behind those dark eyes.
Did I mention that she was blind too, that a hand passed in front of her eyes produced no flicker of reaction, that she had no way of recognising one human being from another as they silently washed and dressed her, fed and bedded her? Fat, thin, male, female, young, old, they were all one to her. She had no favourites.
So Annie lay in front of me, a tiny scrap of humanity, with full Human Rights, as is her due, swaddled like the baby Jesus in a utilitarian white cloth – what difference did colour make to her? and I cast about the room, searching for clues to fill my empty page.
It was a pleasant suburban bungalow, with a large and sunlit garden; the furniture was expensive and well cared for; no complaints there, nor clue to Annie’s wishes. Time to ignore the the injunction that I interview Annie on her own. I called one of the carers into the room, to see what she could tell me.
“Did Annie have any visitors?” I enquired, mindful of the substantial sum that was paid out every year to enable Annie’s Mother to leave her West Indies home and travel to England to visit her daughter – you wouldn’t deny a poverty stricken and traumatised Mother the financial wherewithal to visit her daughter would you? Indeed, so traumatised was she, that she had received payment from the ‘Thalidomide fund’ in her own right, to ‘compensate’ her for the terrible negligence of the drug company. You wouldn’t deny her the right to use that money to return to the bosom of her own family and buy a home there, would you?
No, Annie had had no visitors for many years…it seems her Mother was still overtaken by guilt and remorse for the drug she had taken to ease the morning sickness, and although she planned to visit her daughter every year, at the last moment she was always overcome by a reluctance to actually face her daughter. At least she made the effort to come as far as London eh? The spirit was willing, but the flesh was weak.
“What of Annie’s daily life” I enquired. “Well”, she said brightly, “Annie was 18 last week, so she doesn’t go to school any more” – School? I hear you say – surely you wouldn’t deny a disabled child an education, it is the law that every child should go to school…and so for the past 13 years, a specially adapted vehicle had turned up every morning, driven by a specially trained driver, and collected the freshly washed and swaddled Annie, and transported her to one of the ‘special needs’ schools dotted around the country, where she lay, immobile and silent, on a different couch, until it was time to leave school and return home, courtesy of the same specially adapted vehicle, with the specially trained driver; there she was handed over to the specially trained carer, one of three on duty all day and night, who washed her yet again, and fed her.
Ah, fed her. Not for Annie a choice of food. Her teeth had been removed many years ago – ‘a preventative action’, no way of telling whether she had toothache or not. Now her daily sustenance was delivered through a tube into her stomach. Quicker and easier for her carers too. All three of them, highly trained nursing staff, not your average carers on a minuscule wage, for Annie had special, special needs…
Which explained why the charity, yes, charity, charged Annie over £2,000 a week to live in that bungalow, and that was nearly 20 years ago. You wouldn’t expect the charity to do all this for Annie for nothing would you? – after all, Annie had a not inconsiderable fortune, drawn from the Thalidomide fund. You wouldn’t expect the state to subsidise someone who was well able to afford to pay their own way in the world would you?
Which brings us neatly back to the Thalidomide fund. For long ago, Annie’s lawyers – she has every right to be represented in law! – had consulted barristers, highly paid barristers, who had spent many months arguing against other highly paid barristers, in front of a highly paid judge, and extracted from the manufacturers of Thalidomide a sum of money to ‘compensate’ Annie for their dreadful negligence. You wouldn’t argue that such negligence should go unpunished would you?
Someone as vulnerable as Annie could not be expected to take care of their money themselves. So my old favourite, the Court of Protection was roped in to look after her money for her. You wouldn’t expect the government to provide that service out of taxpayers money when Annie was a wealthy woman would you? So Annie paid a handsome sum each year, for someone to invest her money, and total up the bills from the charity, and pay for her reasonable expenses, like the cost of her Mother coming to see her every year, and the nurses who watched over her whilst she slept at night, and waited patiently for her to return from school each day.
I cannot think of Annie, which I do as clearly as if it was yesterday that I met her, without the word ‘hostage’ coming into my mind. A hostage to so many peoples fortunes. The barristers, the solicitors, the nurses, the charity, the special needs drivers, the special needs school, the social workers, the disabled living specialists, the judges, the investment specialists, the case workers in the Court of Protection, her family, me even. All drawing their slice of Annie’s fortune.
So forgive me if I don’t raise a cheer to hear that yesterday the government decided it would apologise to Annie, and throw another £20 million into the Thalidomide fund, now sadly depleted. For whilst it is right and proper that those who display criminal negligence should pay the price in law, quantifying that price in financial terms will only benefit the army of people who depend on Annie’s very existence for their daily bread. And Annie won’t even hear the apology.
Now one of the tasks of the High Court would be to make a Will for Annie. She was now an adult after all. You wouldn’t deny her the chance to leave what was left of her fortune to whoever she chose? Her inability to speak shouldn’t count against her, that would be discrimination. Someone must speak for her. That is why we protect the vulnerable and exercise their proxy autonomy for them.
Who would you name in that Will?
-
January 15, 2010 at 11:50 -
Please tell me you made all that up, AR.
-
January 15, 2010 at 12:31 -
Controversial I know, but I feel she should have been spared the nightmare that is her existence not to mention the resources committed to that end.
-
January 15, 2010 at 13:14 -
The human race is a curate’s egg on average, but averages are misleading. Anyone who, for example, works for Carter Ruck, or ‘manages’ the money of the vulnerable for gain, or gets paid for (not) doing an important thing is a bad egg. They are thus not only producing methane – which we filthy Warmists think bad for the ecology – but also abusing oxygen, of which we need all that we can get.
So while maturecheese has a point about mercy killing, I’m more a merciless killing sort of chap myself. If you follow.
Great piece Ms Raccoon: well researched, and well moving.
TS x -
January 15, 2010 at 13:25 -
I thought I was a tough, grizzled old cynic, Anna, but this brought tears to my eyes. I can only hope her soul will one day be free.
A wonderful, heart-rending piece – thank you.
-
January 15, 2010 at 13:35 -
Shocking, Anna.
I feel sad, angry, helpless – all at once. -
January 15, 2010 at 14:05 -
I remember when all this was going through the courts, it was a farce then, as it is now. a complete abuse of the poor child(ren). But at least their existence has been made more bearable. I feel for them and hope they are looked after in the best way , we can hope for.
Your article simply reinforces my experienced opinion of the institutions of our society, government, legal, courts, lawyers, judges, corporations, etc. I’ll leave it there.
-
January 15, 2010 at 14:12 -
And you honestly thought about giving up bloggjng?
Excellent piece.
-
January 15, 2010 at 14:26 -
Sometimes you make us laugh. Sometimes you make us think.
And this time you made me weep – not for the first time when reading your blog.
How do you deal with this stuff from your past? -
January 15, 2010 at 15:09 -
We humble acolytes ought to petition the Pope to beatify our favourite blogger. St. Anna Raccoon could well become the patron saint of…. er, whatever we wish.
-
January 15, 2010 at 17:05 -
Well written article Anna that would move even the hardest and coldest heart.
-
January 15, 2010 at 19:23 -
Thank you.
-
January 15, 2010 at 22:08 -
To think all this misery was caused by a diet deficient in vitamin B complex. Thalidomide its self is useful for several reasons – the fact it could control pain after morphine became ineffective in terminal cancer cases being one of them.
I wonder how many of the medical problems of today are caused by diet, and I don’t just mean fatness, but all the allergic reactions and similar complaints.
-
January 15, 2010 at 22:38 -
Maybe not just diet, ivan. Am I the only one who wonders whether the increase in childhood asthma has just the teensiest bit to do with those hideous, plug-in, atomising ‘room fragrancers’ on sale in every supermarket? Shall we all get our babies to breathe microscopic droplets of chemically-mysterious ‘Spring Meadow’ deep into their developing lungs and then wonder why they have respiratory problems?
-
January 16, 2010 at 19:40 -
You hit on one of my favorites, Gloria. F*ck the fragrancers.. *)
Only 2 months ago, when down back in Cannes in my villa, it took me 2 days to find out that I was “breathless”, because the young lad, that I had allowed to stay there for a couple of weeks, had put those bl**dy things everywhere…*) No, you did misunderstand. I said “Fala com fragrancers”
-
January 16, 2010 at 22:06 -
I think “FalacomMcCann” sounds more like it than “For
-
January 16, 2010 at 22:08 -
And, good evening or rather good night to you too, Ms. Raccoon
-
January 19, 2010 at 14:47 -
Recently, I had my first brush with the Portuguese Court of Family and Minors. I have bought a property from a gentleman who, after a couple of strokes, was put under tutorship of his eldest son. In spite of the fact that, somewhere along the line of all those strokes he (an ex-Judge in the High Court) had given an extremely extensive power of attorney to 2 of his children, the sale could not proceed without the Court amen. Apart from the excruciantingly slow pace of the proceedings (the whole thing took more than 8 months, for a very simple problem as the property was falling to pieces and he didn’t have any use for it), I must say that I feel quite comfortable about the way these things are taken care of in Portugal: the tutor required permission to sell, the other heirs signed a paper saying that they agreed, the Public Prosecutor was asked his opinion on behalf of the gentleman, the Court authorized the sale. The tutor has 3 months to prove that the sale went ahead and the money was duly deposited in a bank account. I have no idea how much that costed, but it shouldn’t be a fortune. The gentleman’s son can go on caring for his father with some more financial ease. I think that the Court does not intervene more than necessary, but I have the impression that it does protect the vulnerable ones.
{ 20 comments }